Jeppesen J, Madsen A, Marquard J & Rahbek J
Living and ageing with spinal muscular atrophy type 2: Observations among an unexplored patient population.
Developmental Neurorehabilitation, February 2010; 13(1): 10-18
Rahbek J, Werge B, Madsen A, Marquardt J, Steffensen BF, Jeppesen J
Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population.
Pediatric Rehabilitation 2005; 8: 17-28.
Jeppesen J, Green A, Steffensen BF, Rahbek J
The Duchenne muscular dystrophy population in Denmark, 1977-2001: prevalence, incidence and survival in relation to the introduction of ventilator use.
Neuromuscular Disorders 2003; 13: 804-812.
Steffensen BF, Lyager S, Werge B, Rahbek J, Mattsson E
Physical capacity in non-ambulatory people with Duchenne muscular dystrophy or spinal muscular atrophy. A longitudinal study.
Developmental Medicine and Child Neurology 2002; 44: 623-632.
Hyde SA , Steffensen B, Fløytrup I, Glent S, Kroksmark AK, Salling B, Werlauff U, Erlandsen M
Longitudinal data analysis: an application to construction of a natural history profile of Duchenne muscular dystrophy.
Neuromuscular Disorders 2001;11:165-170.
Vestergaard P, Glerup H, Steffensen B, Rejnmark L, Rahbek J, Mosekilde L
Fracture risk in patients with muscular dystrophy and spinal muscular atrophy.
Journal of Rehabilitation Medicine 2001; 33: 150-155.
Gøtzsche C-O
Den totale livssituation for børn med Duchenne’s muskeldystrofi.
Ugeskrift for Læger 1981; 143/22: 1391-1394.
Jeppesen J
Patienter i forening – en stærk medicin.
Master of Public Health, Aarhus Universitet, 2003
Frost, A (red.)
At leve med ALS. God praksis i forbindelse med sygdommen amyotrofisk lateral sklerose.
Institut for Muskelsvind 2002.
Frost, A (red.)
Det myasteniske puslespil. Brikker til forståelse af sygdommen Myasthenia Gravis.
Institut for Muskelsvind 2001.
Møller J, Rahbek J, Schelde J,.Steffensen B (red.)
Muskelsvind hos børn - en bog for forældre til muskelsvindbørn.
Muskelsvindfonden 1996, 2. udgave.
En Duchenne-drengs fysiske udvikling fra 5 års-alderen.
Årlige videooptagelser redigeret i 3 sammenfatninger: Lasses hverdag, 1996; Lasses hverdag 2, 2000; Forebyggelse og behandling af rygskævhed, 2001.
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